About Chronic Life Media and Patient Power Collective

Chronic Life Media

Chronic Life Media (CLM) is a digital platform designed to empower people with chronic illnesses and rare diseases to lead productive, fulfilling lives.

Millions of people worldwide live with chronic illnesses or rare diseases. These individuals often face unique challenges, including:

  • Social isolation and stigma

  • Difficulty managing mental health alongside physical health

  • Navigating career and financial challenges

  • Limited access to reliable information and support networks

  • Lack of understanding and support from educational institutions and the healthcare system

CLM will significantly improve the lives of millions of people living with chronic illnesses and rare diseases. By fostering a supportive online community, providing access to valuable resources, and empowering users to advocate for themselves, CLM will bridge the gap in existing support systems.

Patient Power Collective

Patient Power Collective, the first initiative of CLM, is a bi-weekly newsletter and community created for patients, caregivers, and families navigating the complexities of chronic illness and rare disease.

We embrace an inclusive definition of chronic illness, amplifying diverse voices from both professional writers (many living with chronic conditions themselves) and everyday people across the spectrum of diagnoses.

Our content provides practical strategies and authentic insights through:

  • Personal essays and reflective narratives

  • Expert interviews and professional guidance

  • Practical life hacks and everyday solutions

  • Profiles celebrating life beyond medical charts

  • Spotlights on patient creators and their work

Editorial Philosophy

  1. Inclusive Definition: We include anyone affected by chronic conditions or rare diseases - whether newly diagnosed, managing long-term, caring for someone, or interested in understanding these experiences better.

  2. Balance of Voices: Feature both professional writers and everyday people sharing their personal experiences, ensuring diverse perspectives across conditions, demographics, and stages of illness/diagnosis.